• I’m still moving forward.

    It’s been a week and a half since my ablation. Things are 50/50 honestly. Around the house, doing normal tasks, my heart is doing amazing. But when I try to do anything more, my heart goes back into episodes. A few days ago I went to the grocery store with my son. Normal day, doing normal tasks. When I got back to our apartment, I carried him up the stairs, and I instantly could tell my heart was going into an episode. It took an hour for it to go back to normal. My heart felt shattered. My emotions felt all over the place. I won’t know until next week…

  • My Next Chance: Surgery Round 3.

    I haven’t shared much lately on my heart because honestly I haven’t known what to say. I’ve struggled with a heart condition for the last 6 years. It doesn’t get easier, but you become more numb. Numb to the pain. Numb to the understanding that you might never have a normal day again. I can normally tell when my heart is getting bad again. Since January I’ve had bad chest pain and numbness in my left arm. It comes and goes, lasting for days at a time. Breathing has become difficult, especially when standing or walking. It’s my normal.  Yesterday I finally saw my doctor for my regular check-up. My…

  • You are enough for motherhood.

    I used to dream of being a mom. I could not wait to embark on that journey. But then my journey with a chronic illness began. I was 18, in college, and single, so I never thought much of my future as a mom. I then started dating, and the thought of being a mom would come and go from my mind. I’d ask myself if I even thought it would be possible. I considered all my options- adoption, surrogacy, and pregnancy. I knew ultimately I wanted to be a mom no matter how that came about, but I really desired to carry my own child. A few years into…

  • God is bigger than a high risk pregnancy.

    Well, it’s been quite some time since I’ve written anything, mainly because the one thing I’ve wanted to write about, we haven’t been sharing. Now that we have made it public….. I’m going to be a mom! I am still in shock writing those words. But I could not be more excited and thankful for what God’s already done in these past ten weeks. I honestly did not think a month ago that we’d be here today- ten weeks pregnant. We’ve had a lot of scares, and I’ve spent weeks crying with fear that something was going wrong. But God showed me that even if something goes wrong, I still…

  • Thy will be done.

    It’s hard to think that God planned this. The pain.  That he looked at me, and said, “I’m giving her this. I’m giving her all these strange heart conditions that doctors don’t understand, but is okay because she can handle it”.  Some days I just want to scream at God. Some days I want to cry to God. Most days, I don’t know how to handle it.  I don’t know whether to be mad or sad.  I have a love/hate relationship with this time of the year. December will mark 3 years since my first diagnosis.  I remember sitting in the small room, thinking, “this is no big deal”.  Little did I…

  • In the eye of the storm.

    I sometimes don’t talk about it, so some people think that I’m okay, or that I’m better. To be honest, I don’t know if I’ll ever know what better feels like. And that scares me. But, at the same time, I am getting used to feeling broken. To feeling like I’m stuck in this hole, and I’ll never get out of it. People have questions. They’re curious.  But, explaining it is hard. Doctors can barely explain, so how can I? It’s like living in a cloud. Living in pain.  The other day, for the first time ever, I started blacking out, and had somewhat of a convulsion in the middle.…