• A Letter to God From The Girl That Desperately Wants to be Healthy.

    God,  I hate this. I used to say that I hated you because of unanswered prayers. I’m sorry- I don’t hate you. I just hate this. The pain. The unanswered tests. The unanswered prayers. The longing to be healthy. I never used to despise medication until I relied on it every day. I never used to want to cry with medication changes. Now that I take three medications, 5 1/2 pills, a day, just to create a [hopefully] well beating heart that day, is exhausting.  It might not seem bad to others, but every morning, and every night I have to take pills to correct an organ that should be able…

  • Even if.

    Many days I ask myself what I will do if this never goes away. What will happen if this is the plan God has for my life? Just one diagnosis after another, without relief.  Some days I think about my life, and wonder how it could get worse. How much more could I handle?  I hate answering the phone when the nurse calls, but at the same time, I know what to expect.  Yesterday I had another phone call.  Another diagnosis.  Another thing to add to my list.  Another thing to make life even more difficult.  Another thing that is another answer.  I hate to say that I’m slowly getting used…

  • Some hope.

    It’s not the outcome I wanted. I wanted to walk in those hospital doors with a misbehaving Herald (my heart is such a big part of my life, he deserved a name, right?! LOL), and walk out with a well-behaved Herald. Well that didn’t happen. I left with a tiny bit of hope implanted in my chest (literally). I was given a permanent heart monitor (linq recorder), which I will wear up to three years- until they find a cause for my heart’s rapid beating. Although it’s not the hope I was hoping for, it’s something. Usually after every disappointing appointment, I would leave questioning God. I would get mad…

  • Beauty from Pain

    People like to say all the time that-  He gives us beauty for ashes and a spirit of joy for mourning. I’m struggling with believing that. You can tell me every single day that God has a plan and that all the pain is for a reason, but that doesn’t make the pain any easier.