There’s been many times over the past six years that I’ve felt like my body was failing me. The one organ that is suppose to keep me alive is not wanting to work properly. Last week I had my follow-up from my ablation, and my doctor was not happy with the results. For the first time in the four years that he’s been my doctor I finally felt like he understood the frustration. He understood how it felt to think a path is going to work, and then it doesn’t. The surgery was successful for a specific type of arrhythmia, but my heart is still having a lot of high…
-
-
I’m still moving forward.
It’s been a week and a half since my ablation. Things are 50/50 honestly. Around the house, doing normal tasks, my heart is doing amazing. But when I try to do anything more, my heart goes back into episodes. A few days ago I went to the grocery store with my son. Normal day, doing normal tasks. When I got back to our apartment, I carried him up the stairs, and I instantly could tell my heart was going into an episode. It took an hour for it to go back to normal. My heart felt shattered. My emotions felt all over the place. I won’t know until next week…
-
My Next Chance: Surgery Round 3.
I haven’t shared much lately on my heart because honestly I haven’t known what to say. I’ve struggled with a heart condition for the last 6 years. It doesn’t get easier, but you become more numb. Numb to the pain. Numb to the understanding that you might never have a normal day again. I can normally tell when my heart is getting bad again. Since January I’ve had bad chest pain and numbness in my left arm. It comes and goes, lasting for days at a time. Breathing has become difficult, especially when standing or walking. It’s my normal. Yesterday I finally saw my doctor for my regular check-up. My…
-
Three Years Post Cardiac Catheterization
Tomorrow marks three years since I had my first heart surgery. I actually had two that day. I went in for a heart catheterization, and a hopeful ablation. I left with a heart catheterization, and then a second procedure to implant a loop recorder. Tomorrow marks three years since I found out firsthand that doctors can’t fix everything, no matter how many medical advancements there are. That a 99.9% success rate means nothing when you’re that .1%. I learned how it would feel to wake up from a surgery, so hopeful, and then to have your dreams crushed by a nurse that tells you it did not work but that there is…
-
You are enough for motherhood.
I used to dream of being a mom. I could not wait to embark on that journey. But then my journey with a chronic illness began. I was 18, in college, and single, so I never thought much of my future as a mom. I then started dating, and the thought of being a mom would come and go from my mind. I’d ask myself if I even thought it would be possible. I considered all my options- adoption, surrogacy, and pregnancy. I knew ultimately I wanted to be a mom no matter how that came about, but I really desired to carry my own child. A few years into…
-
One day is today.
This month marks five years since I was first diagnosed with a temperamental heart. I’ve gone to more doctor appointments than I can count, and the longest I think I’ve ever gone in between appointments has maybe been around three months. Today, I was cleared for six months. SIX. I’ve been cleared for that long before, but I ended up going in earlier for an appointment. I’m really hoping this six months is really six months. I used to walk out to my car, upset, frustrated, mad at my body, mad at God. Honestly mad at everything. I would question why me. I would sit in my car and cry. I…
