I used to dream of being a mom. I could not wait to embark on that journey. But then my journey with a chronic illness began. I was 18, in college, and single, so I never thought much of my future as a mom. I then started dating, and the thought of being a mom would come and go from my mind. I’d ask myself if I even thought it would be possible. I considered all my options- adoption, surrogacy, and pregnancy. I knew ultimately I wanted to be a mom no matter how that came about, but I really desired to carry my own child. A few years into…
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One day is today.
This month marks five years since I was first diagnosed with a temperamental heart. I’ve gone to more doctor appointments than I can count, and the longest I think I’ve ever gone in between appointments has maybe been around three months. Today, I was cleared for six months. SIX. I’ve been cleared for that long before, but I ended up going in earlier for an appointment. I’m really hoping this six months is really six months. I used to walk out to my car, upset, frustrated, mad at my body, mad at God. Honestly mad at everything. I would question why me. I would sit in my car and cry. I…
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Left vs Right
These are two medications I take daily. The left is a medication for my heart. It works to slow my heart down and allows my heart rate to be normal around 75% of the time. It doesn’t make my life normal but manageable. The right is an antidepressant. I have taken it for the last two years to help with depression and anxiety. It allows it to be reduced tremendously. It’s not a ‘happy pill’ but it makes every day a little more manageable. Both help me daily to be healthy so I can be the best wife and mother I can be. Yet, the one on the left society…
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Holding on to Hope.
A few days ago I had a successful ablation (a procedure that is used to scar small areas in your heart that may be causing arrhythmias). I was so happy to finally {hopefully} be able to have a normal life. And then it happened yesterday: the beginning of another blackout. I was heartbroken all over again. I was on the verge of crying, and just wanted to go hide in my room, and lock everyone out. I have experienced a lot of high heart rates, a lot more than I had been recently, which scares me even more. It was suppose to be successful, yet I’m experiencing more episodes. I am trying to…
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In the eye of the storm.
I sometimes don’t talk about it, so some people think that I’m okay, or that I’m better. To be honest, I don’t know if I’ll ever know what better feels like. And that scares me. But, at the same time, I am getting used to feeling broken. To feeling like I’m stuck in this hole, and I’ll never get out of it. People have questions. They’re curious. But, explaining it is hard. Doctors can barely explain, so how can I? It’s like living in a cloud. Living in pain. The other day, for the first time ever, I started blacking out, and had somewhat of a convulsion in the middle.…
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A Letter to God From The Girl That Desperately Wants to be Healthy.
God, I hate this. I used to say that I hated you because of unanswered prayers. I’m sorry- I don’t hate you. I just hate this. The pain. The unanswered tests. The unanswered prayers. The longing to be healthy. I never used to despise medication until I relied on it every day. I never used to want to cry with medication changes. Now that I take three medications, 5 1/2 pills, a day, just to create a [hopefully] well beating heart that day, is exhausting. It might not seem bad to others, but every morning, and every night I have to take pills to correct an organ that should be able…
