• Even if.

    Many days I ask myself what I will do if this never goes away. What will happen if this is the plan God has for my life? Just one diagnosis after another, without relief.  Some days I think about my life, and wonder how it could get worse. How much more could I handle?  I hate answering the phone when the nurse calls, but at the same time, I know what to expect.  Yesterday I had another phone call.  Another diagnosis.  Another thing to add to my list.  Another thing to make life even more difficult.  Another thing that is another answer.  I hate to say that I’m slowly getting used…

  • I am not okay- yet.

    Today started out not so good. Long story short, I broke down in tears in the bathroom (even though I shed a few at my desk). For the first time I realized how much this was affecting me, and how I can no longer hide it.  I never like to tell people how much this is affecting me. No one knows how bad it really is. Not my family, my friends, or even this blog. People will tell me, I’m so sorry, I hope you get better.  All I can think is- if they only knew.  If they only knew that what they see is a front. What they see is the me…

  • 200.

    For the first time in a really long time I am okay.  I went to yet another appointment last Friday. I was somewhere between ‘dreading it’ and ‘hopeful’. I left actually feeling okay about it all, which is a first. Like most appointments, I was put on more medication. But like most appointments, I was really hoping for something different. I am so tired of taking medications to “fix” the problem when it doesn’t fix anything. He also decided that it’s time to see a neurologist. Another doctor added to my lovely list. Yet I am praying another set of opinions and eyes will find the cause to it all. …

  • Another appointment. Another day.

    I try my hardest to stay positive. I try my hardest to believe that everything will be okay. But I will admit, there are days I don’t see a getting better in my future. I had another doctors appointment today. I have spent weeks praying and today I hit a wall. I truly believed my prayers would be answered. That we would be close to being done with this, and yet I feel like we’re starting over. More changes. More tests. No new answers.