• A Letter to God From The Girl That Desperately Wants to be Healthy.

    God,  I hate this. I used to say that I hated you because of unanswered prayers. I’m sorry- I don’t hate you. I just hate this. The pain. The unanswered tests. The unanswered prayers. The longing to be healthy. I never used to despise medication until I relied on it every day. I never used to want to cry with medication changes. Now that I take three medications, 5 1/2 pills, a day, just to create a [hopefully] well beating heart that day, is exhausting.  It might not seem bad to others, but every morning, and every night I have to take pills to correct an organ that should be able…

  • Even if.

    Many days I ask myself what I will do if this never goes away. What will happen if this is the plan God has for my life? Just one diagnosis after another, without relief.  Some days I think about my life, and wonder how it could get worse. How much more could I handle?  I hate answering the phone when the nurse calls, but at the same time, I know what to expect.  Yesterday I had another phone call.  Another diagnosis.  Another thing to add to my list.  Another thing to make life even more difficult.  Another thing that is another answer.  I hate to say that I’m slowly getting used…

  • I want to be labeled as healthy.

    7 years ago I made the decision to become a vegetarian. It was an innocent decision that lasted for a few years that way. Then it slowly started to become my excuse.  My excuse to not have to eat much. My excuse I could use when I wanted to skip a meal. “Oh, there’s nothing here I can eat“ My excuse to eat as little as possible.  Vegetarianism can be healthy. For me, it wasn’t about a lifestyle change or better eating habits- it was a way to hide the fact that I hated my body. It was the excuse that people would believe when I wouldn’t eat.  Vegetarianism is…

  • I am not okay- yet.

    Today started out not so good. Long story short, I broke down in tears in the bathroom (even though I shed a few at my desk). For the first time I realized how much this was affecting me, and how I can no longer hide it.  I never like to tell people how much this is affecting me. No one knows how bad it really is. Not my family, my friends, or even this blog. People will tell me, I’m so sorry, I hope you get better.  All I can think is- if they only knew.  If they only knew that what they see is a front. What they see is the me…

  • Some hope.

    It’s not the outcome I wanted. I wanted to walk in those hospital doors with a misbehaving Herald (my heart is such a big part of my life, he deserved a name, right?! LOL), and walk out with a well-behaved Herald. Well that didn’t happen. I left with a tiny bit of hope implanted in my chest (literally). I was given a permanent heart monitor (linq recorder), which I will wear up to three years- until they find a cause for my heart’s rapid beating. Although it’s not the hope I was hoping for, it’s something. Usually after every disappointing appointment, I would leave questioning God. I would get mad…

  • Another appointment. Another day.

    I try my hardest to stay positive. I try my hardest to believe that everything will be okay. But I will admit, there are days I don’t see a getting better in my future. I had another doctors appointment today. I have spent weeks praying and today I hit a wall. I truly believed my prayers would be answered. That we would be close to being done with this, and yet I feel like we’re starting over. More changes. More tests. No new answers.