Tag: spoonie

You are enough for motherhood.

You are enough for motherhood.

I used to dream of being a mom. I could not wait to embark on that journey. But then my journey with a chronic illness began. I was 18, in college, and single, so I never thought much of my future as a mom. I […]

A little honesty.

A little honesty.

Being a mom has been amazing, and I am so blessed to have my son in my life. The love I have for him is indescribable.  A few years ago I wasn’t sure if I’d ever be able to carry a baby, or have the […]

One day is today.

One day is today.

This month marks five years since I was first diagnosed with a temperamental heart. I’ve gone to more doctor appointments than I can count, and the longest I think I’ve ever gone in between appointments has maybe been around three months. Today, I was cleared […]

In the eye of the storm.

I sometimes don’t talk about it, so some people think that I’m okay, or that I’m better. To be honest, I don’t know if I’ll ever know what better feels like. And that scares me. But, at the same time, I am getting used to […]

A Letter to God From The Girl That Desperately Wants to be Healthy.

A Letter to God From The Girl That Desperately Wants to be Healthy.

God,  I hate this. I used to say that I hated you because of unanswered prayers. I’m sorry- I don’t hate you. I just hate this. The pain. The unanswered tests. The unanswered prayers. The longing to be healthy. I never used to despise medication […]

Even if.

Many days I ask myself what I will do if this never goes away. What will happen if this is the plan God has for my life? Just one diagnosis after another, without relief.  Some days I think about my life, and wonder how it […]