• One day is today.

    This month marks five years since I was first diagnosed with a temperamental heart. I’ve gone to more doctor appointments than I can count, and the longest I think I’ve ever gone in between appointments has maybe been around three months. Today, I was cleared for six months. SIX. I’ve been cleared for that long before, but I ended up going in earlier for an appointment. I’m really hoping this six months is really six months. I used to walk out to my car, upset, frustrated, mad at my body, mad at God. Honestly mad at everything. I would question why me. I would sit in my car and cry. I…

  • Holding on to Hope.

    A few days ago I had a successful ablation (a procedure that is used to scar small areas in your heart that may be causing arrhythmias). I was so happy to finally {hopefully} be able to have a normal life.  And then it happened yesterday: the beginning of another blackout.  I was heartbroken all over again. I was on the verge of crying, and just wanted to go hide in my room, and lock everyone out. I have experienced a lot of high heart rates, a lot more than I had been recently, which scares me even more. It was suppose to be successful, yet I’m experiencing more episodes.  I am trying to…

  • Thy will be done.

    It’s hard to think that God planned this. The pain.  That he looked at me, and said, “I’m giving her this. I’m giving her all these strange heart conditions that doctors don’t understand, but is okay because she can handle it”.  Some days I just want to scream at God. Some days I want to cry to God. Most days, I don’t know how to handle it.  I don’t know whether to be mad or sad.  I have a love/hate relationship with this time of the year. December will mark 3 years since my first diagnosis.  I remember sitting in the small room, thinking, “this is no big deal”.  Little did I…

  • In the eye of the storm.

    I sometimes don’t talk about it, so some people think that I’m okay, or that I’m better. To be honest, I don’t know if I’ll ever know what better feels like. And that scares me. But, at the same time, I am getting used to feeling broken. To feeling like I’m stuck in this hole, and I’ll never get out of it. People have questions. They’re curious.  But, explaining it is hard. Doctors can barely explain, so how can I? It’s like living in a cloud. Living in pain.  The other day, for the first time ever, I started blacking out, and had somewhat of a convulsion in the middle.…

  • A Letter to God From The Girl That Desperately Wants to be Healthy.

    God,  I hate this. I used to say that I hated you because of unanswered prayers. I’m sorry- I don’t hate you. I just hate this. The pain. The unanswered tests. The unanswered prayers. The longing to be healthy. I never used to despise medication until I relied on it every day. I never used to want to cry with medication changes. Now that I take three medications, 5 1/2 pills, a day, just to create a [hopefully] well beating heart that day, is exhausting.  It might not seem bad to others, but every morning, and every night I have to take pills to correct an organ that should be able…

  • Even if.

    Many days I ask myself what I will do if this never goes away. What will happen if this is the plan God has for my life? Just one diagnosis after another, without relief.  Some days I think about my life, and wonder how it could get worse. How much more could I handle?  I hate answering the phone when the nurse calls, but at the same time, I know what to expect.  Yesterday I had another phone call.  Another diagnosis.  Another thing to add to my list.  Another thing to make life even more difficult.  Another thing that is another answer.  I hate to say that I’m slowly getting used…